That news was not completely a surprise to me because Josh had had a flu shot but not the H1N1 yet. But Josh had heard of people dying of H1N1 Swine flu on the news and even a friend of one of his nurses had died of it. So, it immediately scared him. I reminded him that he didn't even think he was sick before we went to the hospital. And that he was well on his way to recovery already. Josh kicked Swine flu's butt :)
Also on Saturday (Jan 30), we found out that a preliminary blood culture result showed a gram positive... meaning there is a bug somewhere that is resistant to the current antibiotic (rocephin) so we changed to Augmentin (which Josh takes in a big pill)
Josh started experiencing some pain in his chest on the right side. After a chest xray Saturday afternoon, we learned that most of the area in his lungs were clearing well, but the bottoms - especially on the right side still had fluid that needed to come out. Josh's doctor said we needed to get him up as much as he could and get walking around, etc. He had more breathing treatments, and we even tried (with the doctor's recommendation) putting Josh's pacer antennas on and turning the breath rate down to the lowest setting while Josh was still on the ventilator. That way the vent would register the pacer breaths as patient initiated breaths and would set itself around them, so to speak. Josh said it hurt, but only for a little while. It did cause him to cough up more mucus, which is what we were hoping for. That allowed him to bring up his oxygen and lower his carbon dioxide levels. But it also tired him out and he was ready for a rest afterwards.
Sat January 30, 2010 5:00pm Josh's chest xray
Saturday (Jan 30) evening, after the xray, I left the hospital long enough to go get some more clean clothes and more of Josh's home medicines we needed in order to stay in the hospital a little longer. We were hoping he could go home in a day or two, though.
By the time I got back, Josh had developed a fever again of about 101.
All night Saturday night/Sunday morning, Josh ran that fever. They gave him tylenol and motrin and even extra cortef (steroid) and nothing brought it down.
Josh today with just his pacers on... (without ventilator)
Sun January 31, 2010 at 12:13pm
had Josh on pacers about an hour but his sats started dipping and his eyes turned glassy so I stopped the pacers and put him back on his ventilator. I think his blood pressure may be a little low, too
Sun January 31 at 1:36pm
Sunday he seemed better than Saturday but still running fever.. they did a blood gas and I'm waiting for results. He is off oxygen right now and on his normal vent settings at the moment, so that is good but when I put him on his pacers he started desatting, so he's pretty worn out
Sun January 31, 2010 at 3:01pm
the ipv machine blasts little blasts of pressuring air and saline (or another med if the doctor orders it) in the trach and down into the lungs in little shots. It uses pure oxygen. It does a good job of cutting up the crud and forcing it up and out. And the pacers force the diaphragm to contract and then release, causing a big breath whether you are ready or not. It sure makes Josh's lungs expand and he gets some good breaths. It makes him cough up junk too.
Sun January 31, 2010 at 5:02pm
latest reports are looking good for Josh - other than his fever (100.6) - his blood gas CO2 41 and O2 96... if this continues maybe we can go home tomorrow!!!!!
Sun January 31, 2010 at 5:07pm
Sun Jan 31, 2010 at 5:08pm
We were hoping to get to go home today but Josh still running fever and desatting. Dr ordered a respiratory panel to try and find the problem.
Mon Feb 1, 2010 at 10:55am
Josh is on his pacers and satting well. And he just had his picc line removed. Still has to get a regular iv line placed tonight
Mon Feb 1, 2010 at 6:56pm they did not put in the iv line, afterall
Dr Smith says he wants to ensure blood culture is negative and respiratory panel is good before sending us home. He is shooting for tomorrow.
Tues February 2, 2010 at 7:46am
Josh has had episodes of chest pain which started up again this morning and was last in his right shoulder. His doctor has ordered a chest xray. We're waiting for them to come get him for that now.
Tues February 2, 2010 at 11:04am
chest xray done.. haven't heard results yet... respiratory panel came back negative... waiting to hear what the doctor says about the chest/shoulder pains Josh was having. Oh, and Josh and I will do a TTM with the pacers soon
Tues February 2, 2010 at 12:50pm
just heard chest xray shows a little more fluid on the right lung which is probably the cause of the pain and the lower oxygen sats today...
Tues February 2, 2010 at 1:41pm
Tues February 2, 2010 at 9:38pm
Dr Smith says we can go home this afternoon!
Wed February 3, 2010 at 8:37am
Wait til Monday to return to school if he seems well enough.
Wed February 3, 2010 at 8:52am
left the hospital around 11am. It was pouring down rain outside!
We made it home through the cold and rain with Josh on the ventilator. Phew!
Wed February 3, 2010 at 12:24pm I had nobody else with me, so it was a nerve racking experience
been busy since we got home from the hospital... unload everything in the rain, doing laundry, clean out fridge, go grocery shopping, meet with nursing case manager, cook dinner, pick up Josh's prescription... and now, watching a movie with Josh and his nurse
Wed February 3, 2010 at 9:38pm