Wednesday, JAN 26th
It's my birthday, but I was so busy, I almost didn't notice... I worked all day, went to school that evening
My husband, James, brought me flowers and a card for my birthday
and I received a few other gifts from friends, family and co-workers
we celebrated a day early Tuesday, JAN 25th
at The Melting Pot for some yummy chocolate fondue!!!!
check out that flame (this is the Flaming Turtle)
I highly recommend the Flaming Turtle!!!!
make sure you try it with the rice krispy treats! YUMMY!
the birthday girl, ME!
my son, Josh
my sister, Amanda
Josh's nurse, Nancy
Thursday, JAN 27th
Josh was coughing up yucky, chunky, dark secretions from his trach... his nose was a constant runny thing... a little worried, but sent him to school
then his temperature starting rising...
his school nurse called me to pick him up...
and I made him an appointment within the hour to see a doctor with his pediatrician's group
strep - negative
flu - negative
sputum culture - results in a few days
in the meantime, another oral antibiotic just in case
that evening, we celebrated my birthday week a bit more with a Strawberry Banana Split cake made by my sister
Friday, JAN 28th
kept Josh home from school after he had a really rough night, had to be suctioned several times
his temp went up even more - too 100.5 (his base temp is often 96-97)
secretions still increased and yucky, but getting a little better
needed a little oxygen to help keep his O2 sats up overnight, but otherwise ok
OH... Josh ran out of growth hormones tonight!
there was some issue with our new insurance trying to get them approved....
waiting for the specialty pharmacy that handles growth hormones to get the official denial from our insurance company and then to send that to Texas Medicaid to see if they will approve paying the entire cost so Josh can get his shipment that should have been here days ago. :(
MONDAY, JAN 31st
Josh seemed well enough to return to school
heard the doctor called with sputum culture results as I was headed to my evening class... left message for me to call the next day
TUESDAY, FEB 1st
Doctor says Josh the culture from his trach grew Pseudomona...
that can be bad... probably turned his secretions dark and stinky....
if current antibiotic does not seem to completely clear him up, he may need to be admitted to
hospital to get IV antibiotics!!! NOT good news
Here is some info I found on pseudomonas:
''Pseudomona'' literally means 'false unit', from the Greek pseudo ('false') and mona ('a single unit').
They are gram-negative, rod-shaped bacteria. They love water, soil and plants. They often cause a fluorescent, yellow-green, stinky secretion. They are also commonly the cause of urinary tract infections. Being Gram-negative bacteria, most Pseudomonas are resistant to penicillin and similar antibiotics, but a number are sensitive to antibiotics such as tobramycin, gentamycin and ciprofloxacin.
You can learn much more about this yucky bug here: http://emedicine.medscape.com/article/226748-overview
meanwhile, the weather turned COLD this afternoon.... expected to just get worse over the next few days... Yay!
Monday, I wore a sleeveless blouse and flip flops to school.
Now we are pulling out our big coats and gloves ....
I hope this doesn't cause Josh any more health troubles
WEDNESDAY, FEB 5th
It's 20 degrees out with wind chill of 4!! Snow in the forecast!! but so far it's been dry and windy
And Josh seems to be doing a little better every day... crossing our fingers he'll stay out of the hospital!
unfortunately no progress reported on the growth hormones, though :(
I had my first test in my Anatomy and Physiology II class tonight.
The subject was the heart and blood.
Found out later I made a 97% on the Lecture portion and a 98% on the Lab.
YAY... it was worth getting out in the frigid temps to go take these tests!
FRIDAY, FEB 4th
Snow Day!!!!! Late last night, the city of San Antonio closed all its highways because of ice. Then, while we were all sleeping, it started to snow.
We got a call with a recorded message at 5AM from Josh's school district saying all classes were canceled. That also meant my work was closed. So, we got to sleep in.
When we finally got up... this is what we saw out front:
It wasn't alot of snow, but any on the ground in San Antonio is amazing!
Josh had to go see this "amazing" occurrence for himself.
Below is a news report with an aerial view of the snow and closed highways in San Antonio:
The snow was all melted off by the afternoon, which was good so people could get out and about again!
Oh, still no word on when Josh will be getting more growth hormone. I worry what that will mean for him. It has been more than a week off the hormone that he has been getting injections for for the last 4 years.
But, Josh seems to have kicked to pseudomona... his temp is back down to normal... his secretions are nice and clear and a little less in the amount, too. And today's temp outside is going back up to the 60's. So, hopefully nothing will creep back in now.